Insomnia Bites

There has been a lot of good this week.  I should have expected that the bad would come and bite me in the ass sooner or later.

Let’s see: Monday was fine.  I just had some fatigue from Sunday’s infusion.  All in all I was happy with myself.  I started Weight Watchers online, did the grocery shopping, picked up the kid and cleaned. I cooked dinner and got several other chores done: A success!

Tuesday: Felt a bit wiped out but plowed ahead with my nasty daily phone calls to my medical creditors.  I have so many that I call one a day in order to work out payment plans or determine if they are correct or whatever.  I had a 2:00 appointment with the Urologist so I could get some more medication poured into my bladder.  It did not go well.  She could not insert the catheter.  After repeated tries, we got lucky and I got a really swollen urethra.  I left with the medicine installed. I spent the rest of the day curled up in bed with pain and cramps from hell.


Wednesday: Kicked some ass… I mopped, vacuumed and swept (not in that order) the whole downstairs.  Then I took care of more bills and my aunt’s bills and took girls to the mall.  I picked up my son and we made it out to dinner…

Then: Whammo

NO SLEEP LAST NIGHT.  My rash is here: the scaly itching that feels like fire ants under the skin.  I have had several biopsies but no one knows what it is.  I have been told it is an ‘atypical autoimmune rash.’  Thanks for that.

I spent time on that black hole known as Facebook. Only the lonely are there at 3:00 a.m.  It is like traveling the aisles of a 24 hour super store. You run into other people who are roaming the aisles looking at nothing. All of us just wandering, while we try to kill time.

I wish I knew why my sleep was so disturbed.  I have been told it is common for people with auto immune and primary immune diseases.  I have learned not to fight it too much.  However, I wish there was a way to fix it.  I take sleep meds.  On the nights like last night, I get up and take more meds in the hopes that I will pass out.  It never works.

Sleep is an important key to health for anyone. For me, it is pivotal.  If I miss too much, I will slam against a wall of pain and flare: some part of me will literally swell from the inside out.

I suppose I should try another sleep study.

I have had one of them.  They are just ridiculous.  You can’t possibly sleep!!!!

They have you so wired up it is awful and the idea that I am being watched like a lab rat, really is off putting:(

Oh well, I will sleep eventually.  Today I power through and hope for better..