There has been a lot of good this week. I should have expected that the bad would come and bite me in the ass sooner or later.
Let’s see: Monday was fine. I just had some fatigue from Sunday’s infusion. All in all I was happy with myself. I started Weight Watchers online, did the grocery shopping, picked up the kid and cleaned. I cooked dinner and got several other chores done: A success!
Tuesday: Felt a bit wiped out but plowed ahead with my nasty daily phone calls to my medical creditors. I have so many that I call one a day in order to work out payment plans or determine if they are correct or whatever. I had a 2:00 appointment with the Urologist so I could get some more medication poured into my bladder. It did not go well. She could not insert the catheter. After repeated tries, we got lucky and I got a really swollen urethra. I left with the medicine installed. I spent the rest of the day curled up in bed with pain and cramps from hell.
Wednesday: Kicked some ass… I mopped, vacuumed and swept (not in that order) the whole downstairs. Then I took care of more bills and my aunt’s bills and took girls to the mall. I picked up my son and we made it out to dinner…
Then: Whammo
NO SLEEP LAST NIGHT. My rash is here: the scaly itching that feels like fire ants under the skin. I have had several biopsies but no one knows what it is. I have been told it is an ‘atypical autoimmune rash.’ Thanks for that.
I spent time on that black hole known as Facebook. Only the lonely are there at 3:00 a.m. It is like traveling the aisles of a 24 hour super store. You run into other people who are roaming the aisles looking at nothing. All of us just wandering, while we try to kill time.
I wish I knew why my sleep was so disturbed. I have been told it is common for people with auto immune and primary immune diseases. I have learned not to fight it too much. However, I wish there was a way to fix it. I take sleep meds. On the nights like last night, I get up and take more meds in the hopes that I will pass out. It never works.
Sleep is an important key to health for anyone. For me, it is pivotal. If I miss too much, I will slam against a wall of pain and flare: some part of me will literally swell from the inside out.
I suppose I should try another sleep study.
I have had one of them. They are just ridiculous. You can’t possibly sleep!!!!
They have you so wired up it is awful and the idea that I am being watched like a lab rat, really is off putting:(
Oh well, I will sleep eventually. Today I power through and hope for better..